A Good Cookie Mom’s Story

Filed under: About Cookies for Kids' Cancer,Good Cookies,Inspire — admin @ 12:41 pm September 8, 2013

My daughter Lucy was 3 years old when she was diagnosed with High Risk Neuroblastoma in 2009. She was a perfectly normal little girl, until that day. She endured multiple rounds of powerful cocktails of chemotherapy, a treatment that while hoping to give her life was also poisoning her. As a nurse, I would look at the IV bags as they slowly dripped and then flowed into my daughter’s body.

Good Cookie Mom Hillary's story

Good Cookie Hillary with her daughters Lucy (right) and Lily (left)

It was terrifying but there were no other options since decades-old chemo is still the standard of treatment for children battling cancer, the number one disease killer of children in the U.S. Lucy was one of more than 13,000 children diagnosed every year and was now part of the ranks of tens of thousands of children who are actively battling cancer on any given day in the U.S. To some she was a statistic, but to me she was and is everything. I’m not sure why, then, so little money and awareness is directed towards childhood cancer.

Lucy’s third round of chemo was vicious. It left her without the energy to hold her head up for more than a few minutes at a time. For more than 10 days after that week-long round of chemo ended, she was listless and just a shadow of her former self. It felt like a lifetime as I willed her back to the land of the living. It is a gut wrenching, out-of-body experience to watch your once full-of-life 3-year-old become a shell of her former self. Pale skin, sunken eyes, bald head, and the scars from incisions from surgeries and bone marrow aspirations… I shed a thousand tears when she wasn’t looking.

In the fog of treatment, I remember going to a grocery store during this time and noticing all the children who were out and about. They were riding their bikes, running, laughing and doing all the things that kids should be doing. All the things that Lucy and 13,000 other children should be doing. Kids should not be sitting in hospital rooms with poison pumping through their veins. Kids should not die from a disease that could be cured if we only addressed the problem by funding more research. Something like cancer doesn’t get better on its own. It doesn’t magically disappear. You have to work at it. Together.

After Lucy finished her 2.5 years of treatment, and made it through her first harrowing year of scans without cancer being detected in her body, I decided I needed to do something to try and make a difference. I wanted to raise awareness about how little money is directed towards pediatric cancer from the government and from drug companies. I wanted people to know that the disease classified as an “orphan disease” actually had faces and families behind it like Lucy’s. I wanted to raise money to help fund research that would hopefully save the children I knew who were still fighting this ugly and ruthless disease. I wanted to make all the angels proud knowing that they had inspired me and so many others into action. I wanted a cure.

I talked with fellow cancer parents about starting an organization called Lucy’s Light to raise awareness and funds for pediatric cancer. Many of them had been involved in different organizations already and had some good information for me. I received Gretchen Witt’s name from my friend Robin who I had met while our girls were in treatment together. She told me that Gretchen had started Cookies for Kids’ Cancer and would be willing to offer her guidance. I then talked with another friend, Carmen, who I met during our kids’ treatment. She told me something that made everything kind of click in my brain. She said that Gretchen had once said to her that we need to band together.

I'm a Good Cookie

When asked to draw a picture about herself, Lucy drew this picture, where she calls herself a Good Cookie.

Instead of having hundreds of different pediatric cancer foundations, we need to group the energy to make the biggest impact. And this totally made sense to me. The voices needed to come together so that they could be heard. I checked out the Cookies for Kids’ Cancer website and loved the fact that it was not about one cancer or one child. I loved hearing from Gretchen that they make every dollar count. It didn’t take long for me to decide that Lucy’s Light would team up with Cookies and donate all money raised to this amazing organization.

My first event was a Dodge Ball tournament. It was a lot of work, but nothing compared to the treatment Lucy had endured. Lucy and her light inspired me and kept me strong. And with her light guiding the way, we had an incredible tournament that far exceeded my expectations. We’re already planning the next tournament and as equally important, we have shined a light on the needs surrounding this awful disease that preys on children in our community.

When our children are born, we worry about so many things to make sure they are safe. Cancer is not something any parent should have to worry about or any child have to suffer through.

Hillary Waldeisen, Mom of Lucy, now 7, and showing no evidence of cancer
Founder of Lucy’s Light and Supporter of Cookies for Kids’ Cancer

Learn more about how you can get involved and Be a Good Cookie. Want to host your own event? Register today!

“Team Good Cookies” Upcoming Events Preview

Filed under: About Cookies for Kids' Cancer,Donations,Team Good Cookies — admin @ 8:43 am July 31, 2013

We’re excited to introduce “Team Good Cookies,” where individuals and groups can raise funds for Cookies for Kids’ Cancer while training for a race or athletic event. We encourage everyone, whether planning an event, training for an event, or if you’ve been thinking about running a race, to use this opportunity to make a difference while you do. Click here to learn more about Team Good Cookies and how you can join!

Here’s a sneak preview of a few events coming up this fall in support of Team Good Cookies:

Event: Iron Force Athletics All Out Against Cancer

  • Location: Natick, MA (near Boston)
  • Date: Sept. 7, 2013
  • Time: 9 AM – 4 PM
  • Details: Stay tuned for more details!
  • Features: 5K & Hybrid Throwdown

Event: Plant City Good Cookie 5K

Event: The Perfect 10

  • Location: West Windsor, NJ
  • Date: Oct. 13, 2013
  • Details: No boys allowed – This one is for the ladies!
  • Features: 10 mile race, 5K, and 1-mile “Daughter Dash” (ages 5-13)

Event: Indianapolis Monumental Marathon

  • Location: Indianapolis, IN
  • Date: Nov. 2, 2013
  • Details: Indiana’s largest & fastest marathon
  • Features: Boston Qualifying Monumental Marathon, Half Marathon, 5K,  and Kids’ Fun Run

Ask us how you can get a discount on the Indianapolis Marathon registration fee when running in support of Team Good Cookies!

September Sneak Peek

Filed under: Corporate Partnerships,Good Cookies,Inspire — admin @ 7:00 am July 30, 2013

In honor of National Childhood Cancer Awareness Month and Cookies for Kids’ Cancer’s 5th anniversary, we’ll be revealing special surprises and incentives throughout the month of September. And with the support of Good Cookies nationwide and a few of our corporate partners, we hope to make this September our best yet. Here’s a sneak peek at some of the events coming this September.

Corporate Partner Events

ASICS Limited Edition Sneaker

In September, ASICS is supporting Cookies for Kids’ Cancer with the release of a limited edition sneaker. Proceeds from the special pediatric cancer awareness shoe, available for both kids and adults, will be donated to Cookies for Kids’ Cancer. The shoes will only be available through September, so don’t miss out on the opportunity to support pediatric cancer research with serious style. Stay tuned for more details.

OXO Annual Match

This September, OXO will launch its 3rd annual pledge to donate $100,000 to Cookies for Kids’ Cancer. One part of this generous gift will come through the offer  match funds raised at events throughout fall. In addition, OXO will release specially marked editions of 10 products, with proceeds from sales going to Cookies for Kids Cancer. Check back for more details on the annual OXO campaign.

King Arthur Flour Match

Beginning in September, King Arthur Flour will be matching funds raised at events this fall, up to $25,000. In addition, proceeds from sales of specially marked packages of flour will be donated to Cookies for Kids’ Cancer. Stay tuned for more details on these incentives and others, including the chance to be a King Arthur Flour Bake Sale Hero!

Good Cookie Events

Richmond, VA: Annual Citywide Bake Sale

The Good Cookies in Richmond, VA are back again for their 4th annual citywide bake sale! Residents in Richmond, from parents and students to transportation employees and businesses– have held three citywide events in the past three years, and have raised more than $150,000 for pediatric cancer research. On Sept. 7, the big day returns, and they’re anticipating their best event yet. Learn more about the Citywide Bake Sale.

Fort Mill, SC: 30 Days for a Cure

Dana Boutwell, Fort Mill’s Strawberry Queen, selected Cookies for Kids’ Cancer as her platform, and is planning multiple events throughout September.One exciting event will be on Sept. 2 at the Charlotte Knight’s game! Fans can expect to see the players wearing  yellow wristbands in honor of Pediatric Cancer Awareness Month. In addition, tickets for a special group of seats will be available for purchase, and a portion of proceeds will be donated to Cookies for Kids’ Cancer. Stay tuned for details.

The Kids Who Inspire Us to Fight

Filed under: Good Cookies,Inspire — admin @ 10:57 am July 17, 2013

Dear Good Cookies,

From our window on the world of pediatric cancer, the Cookies for Kids’ Cancer team PERSONALLY knows 4 children who lost their courageous battles with cancer this week. Beyond those 4 faces, there have been at least 65 other children who have lost their battle in the past 7 days.

As a matter of fact every single week day, 46 children are diagnosed with this cruel disease, totaling more than 13,000 children a year. To us, these are not simply numbers – these are beautiful individuals with all the promise the world has to offer.

We refuse to allow their stories to be simply sad, with potentially tragic endings. Their stories inspire us each day to do all we can to give hope to families facing this battle.

Click here to read the stories of just a few of the Kids Who Inspire Us. Then please consider taking action to make a difference.

Click here to learn more about how you can get involved.

Kick Summer Boredom

Filed under: Bake Sale,Good Cookies,Inspire,Uncategorized — admin @ 10:31 am July 9, 2013

While the first weeks of summer fly by with vacations, camps and days at the pool, there comes a point where activities to keep the kids entertained aren’t easy to find. But with these five ways to kick summer boredom, your family can keep busy and give back at the same time.

1. Switch Up the Menu

Summer is a great time to get creative with recipes, especially since colorful refreshing fruit like watermelon is in season.

The opportunities for summer treats are endless. Like these easy-to-make watermelon “cookies,” sure to be a hit at any bake sale. Get more summer recipe ideas by following Cookies for Kids’ Cancer on Pinterest.

Share your favorite summer event ideas with us on Twitter and Facebook too!

2. Bring in the Troops

Planning a Cookies for Kids’ Cancer fundraiser with a Girl Scout troop is a great way for the group to have fun, bond and get involved with the community.

Additionally, any Girl Scout troop that holds a bake sale or other fundraising event will receive special Cookies for Kids’ Cancer patches for their support.

Ask about getting a troop involved today!

3. Have a Car Wash

On a hot summer day, nothing feels better than splashing in the water. Next time you’re thinking about heading to the pool or turning on the sprinklers, hold a car wash instead.

Not only will the kids enjoy decorating signs and posters, but they’ll have fun in the water, all while raising much-needed funds for pediatric cancer research.

Sign up to host an event today!

4. Start a New Tradition

Follow the lead of these Good Cookies in the Hamptons, who just held their FOURTH annual 4th of July bake sale for Cookies for Kids’ Cancer. Independence Day may be over, but Labor Day will be here before you know it.

National Kids’ Day and Founders’ Day are in August as well. Think about some holidays or occasions coming up this summer and celebrate by starting a new Good Cookie tradition.

5. Involve Local Businesses

Good Cookies host events in all shapes and sizes, and no effort is too small to make a difference. If you find yourself with time to spare or could use something already planned to raise funds, take advantage of the opportunity.

Many businesses offer discounted prices for charity fundraisers, and will even donate items for your event. Organize a percentage night at a local burger hang-out or ice cream shop. Turn a birthday party at the bowling alley into fundraiser. Every dollar counts.

Meet Our 2013 Good Cookie Dad!

Filed under: Good Cookies,Inspire — admin @ 7:13 am June 13, 2013

Rob Charlebois

If it weren’t for my dad I wouldn’t be who I am today. My dad has raised 5 girls and 1 boy. My mom had a lot of issues so my dad basically raised us alone.

He is always there for us and gives us the best advice. He would drop anything in a second to come help us if we needed it. In 2004, my brother was born with cancer.

My dad had to live in NYC for months at a time up until 2009 because he kept relapsing. My dad never left his side and never gave up. He ended up losing his job.

Zachary is still alive today, cancer free and lives with my dad. I have never seen a relationship as close as theirs.

Just a couple months ago we found out my dad has Appendix Cancer, a very rare cancer that gives survivors a maximum of 5 years to live.

He has gone through 3 rounds of chemo and will be getting surgery on June 20. I think my dad deserves a huge reward for all that he’s done and for all that he’s gone through.

ASICS America Fights Cancer with Fall Collections

Filed under: About Cookies for Kids' Cancer,Corporate Partnerships — admin @ 1:26 pm June 10, 2013

IRVINE, CA, June 5, 2013 – ASICS America expands its charitable initiatives with three unique partnerships for the fall of 2013. In September, October, and November, ASICS will launch three distinct collections to benefit Cookies for Kids’ Cancer, past charitable partner Right Action for Women (RAW), and the Prostate Cancer Foundation, respectively.

Over this three-month period, ASICS pledges to donate a portion of sales from each collection to its affiliated charity. The non-profit program reinforces ASICS’ founding mission to support a “sound mind, sound body” and to aid in the fight against cancer in the United States.

“We were so inspired by our first-ever breast cancer awareness collection last year that we knew we wanted to expand our commitment to the ongoing battle against cancer in 2013,” commented ASICS America Director of Marketing, Shannon Scott. “ASICS is honored to partner with these esteemed non-profit organizations.  We hope to increase awareness around the fantastic work these charities do in the fight against a disease that touches millions of lives each year.”

ASICS will support the following causes and organizations:

  • Childhood Cancer Awareness with Cookies for Kids’ Cancer: Committed to raising funds for research to develop new, improved treatments for pediatric cancer, the #1 disease killer of children in the United States, Cookies for Kids’ Cancer raises funds through community events across the country.  To show support for the cause, ASICS is launching a gold product collection, the official color of Pediatric Cancer, during Childhood Cancer Awareness Month in September.

Breast Cancer Awareness with Christina Applegate’s Right Action for Women (RAW): ASICS will again join forces with RAW, a charitable services fund of the Entertainment Industry Foundation, that helps provide assistance to women who are at increased risk of breast cancer.  Expanding upon the popularity of last year’s RAW collaboration, ASICS will launch new additions to its limited edition pink collection in October 2013.

Prostate Cancer Awareness with Prostate Cancer Foundation (PCF): Utilizing unique strategies for identifying and investing in the most innovative and results-driven research programs, the Prostate Cancer Foundation has generated life-saving results in the fight against prostate cancer.  In the past three years, research supported by the Foundation has helped deliver five new drugs for patients with advanced disease. ASICS will support the cause with a bold, bright blue product collection in November 2013.

For more information on ASICS AMERICA and the 2013 charity collections, please visit www.asicsamerica.com. Be sure to follow @asicsamerica on Twitter for additional information this fall.

About ASICS

Anima Sana In Corpore Sano, meaning “A Sound Mind in a Sound Body,” is an old Latin phrase from which ASICS is derived and the fundamental platform on which the brand still stands. The company was founded more than 60 years ago by Kihachiro Onitsuka and is now a leading designer and manufacturer of performance athletic shoes, apparel and accessories. For more information, visit www.asics.com.

About Cookies for Kids’ Cancer

Cookies for Kids’ Cancer was founded by parents inspired by their son’s fight against cancer. Today pediatric cancer remains the number one disease killer of children in the United States, due in large part to a lack of funding for research into new and improved therapies. Through the concept of local bake sales and online cookie sales, Cookies for Kids’ Cancer inspires individuals, organizations, and businesses to join in the fight against pediatric cancer by raising the funds and awareness necessary to change the face of pediatric cancer and provide more families with the hope they deserve.

Cookies for Kids’ Cancer grants funds raised to leading pediatric cancer research facilities including Memorial Sloan-Kettering Cancer Center, St. Jude Children’s Research Hospital, Children’s Hospital of Philadelphia, Texas Children’s Cancer Center and Dana Farber Cancer Center. For more information, visit www.cookiesforkidscancer.org. Follow on Facebook at www.facebook.com/cookiesforkidscancer and Twitter at www.twitter.com/cookies4kids.

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Help Phoenix Denny’s Raise Funds this Month

Filed under: Donations,Inspire — admin @ 11:42 am May 16, 2013

Throughout May, about 60 Denny’s locations in and around the Phoenix region are raising funds for Cookies for Kids’ Cancer by selling paper cookies for the donation amount of your choice! The participating locations are listed below, so be sure to stop by for a meal and give what you can to help us fund pediatric cancer research!

CITY ADDRESS
ANTHEM 4121 W. ANTHEM WAY
BUCKEYE 441 S WATSON RD
BULLHEAD CITY 1762 HWY 95
CAMP VERDE 1630 W HWY 260
CASA GRANDE 1885 E. FLORENCE BLVD.
COTTONWOOD 2211 E HIGHWAY 89A
ELOY 16189 S SUNSHINE BLVD
FLAGSTAFF 2306 E. LUCKY LN.
FLAGSTAFF 2122 S. MILTON RD.
FOUNTAIN HILLS 17053 E SHEA BLVD
GILBERT 3971 S GILBERT ROAD
GILBERT 1661 E WARNER RD
GLENDALE 10614 N. 43RD AVE.
GLENDALE 5161 W. THUNDERBIRD AVE.
GLENDALE 9856 W CAMELBACK RD
GOODYEAR 1218 N LITCHFIELD ROAD
HOLBROOK 2510 NAVAJO BLVD.
KINGMAN 3255 ANDY DEVINE
KINGMAN 3300 E ANDY DEVINE AVE
LAKE HAVASU 1620 MC CULLOCH BLVD.
MESA 1150 S. COUNTRY CLUB DR.
MESA 1330 S POWER ROAD
MESA 1210 E MAIN ST
PAGE P.O. BOX 7139, 669 SCENIC VIEW ROAD
PAYSON 312 S. BEELINE HWY
PEORIA 8737 N.W. GRAND AVE.
PEORIA 8277 WEST BELL ROAD
PHOENIX 5002 N. 7TH ST.
PHOENIX 3456 W. BETHANY HOME RD.
PHOENIX 2717 W. BELL RD.
PHOENIX 2120 E. CACTUS RD.
PHOENIX 4120 N 51ST AVE.
PHOENIX 2360 W. NORTHERN AVE.
PHOENIX 1401 NORTH 75TH AVE.
PHOENIX 3205 EAST BELL ROAD
PHOENIX 2525 WEST DEER VALLEY ROAD
PHOENIX 3160 W CAREFREE HWY
PHOENIX 2801 N BLACK CANYON
PHOENIX 9030 N BLACK CANYON HWY
PHOENIX 6700 WEST LATHAM
PRESCOTT 1316 IRON SPRING RD.
SCOTTSDALE 3315 N. SCOTTSDALE RD.
SCOTTSDALE 9160 E. INDIAN BEND RD.
SCOTTSDALE 10340 N. SCOTTSDALE RD.
SHOW LOW 4471 WHITE MOUNTAIN ROAD
SUN TAN VALLEY 1758 WEST HUNT HWY
SURPRISE 14799 W. GRAND AVE.
TEMPE 825 S. 48TH ST.
TEMPE 1994 W BASELINE RD
TEMPE 650 N SCOTTSDALE ROAD
TEMPE 1343 W BROADWAY
TEMPE 4403 S RURAL RD
THATCHER 2875 W HWY 70
TUBA CITY 2 LEGACY LANE
WICKENBURG 1010 N. TEGNER ST.
WINSLOW 400 TRANSCON LANE
YOUNGTOWN 11121 GRAND AVE

NY Denny’s Raise Funds for CFKC in May

Filed under: Donations,Inspire — admin @ 7:38 am

Throughout May, 30 Denny’s locations in upstate New York are raising funds for Cookies for Kids’ Cancer by selling paper cookies for the donation amount of your choice! The participating locations are listed below, so be sure to stop by for a meal and give what you can to help us fund pediatric cancer research!

CITY ADDRESS
AMHERST 3920 MAPLE ROAD
AUBURN 176 GRANT AVE.
BATAVIA 364 W. MAIN ST.
BUFFALO 2215 DELAWARE AVE.
BUFFALO 4445 MAIN ST.
CAMILLUS 5300 W. GENESSEE ST.
CANANDAIGUA 160 EASTERN BLVD.
CHEEKTOWAGA 4610 GENESEE ST.
CICERO 7873 BREWERTON ROAD
CORFU 8484 ALLEGHENY ROAD
FAIRPORT 4 PERINTON HILLS MALL
FREDONIA 10390 BENNET ROAD
GENESEO 4240 LAKEVILLE ROAD
GENEVA 813 CANANDAIGUA RD
HAMBURG 5092 CAMP RD.
HORSEHEADS 950 CHEMUNG ST.
LANCASTER 4757 TRANSIT RD
LOCKPORT 5699 TRANSIT ROAD
N. SYRACUSE 201 LAWRENCE ROAD
NIAGARA FALLS 8020 NIAGARA FALLS
ORCHARD PARK 3165 SOUTH WESTERN BLVD.
PAINTED POST 118 VICTORY HIGHWAY
ROCHESTER 2890 W. RIDGE ROAD
ROCHESTER 911 JEFFERSON ROAD
SYRACUSE 6591 THOMPSON ROAD
SYRACUSE 103 ELWOOD DAVIS ROAD
SYRACUSE 3414 ERIE BLVD
VICTOR 7503 MAIN ST. – FISHER
W. SENECA 1881 RIDGE ROAD
WATERTOWN 1142 ARSENAL ST

A Letter from Gretchen Holt-Witt

Filed under: Inspire,Uncategorized — admin @ 11:11 am May 13, 2013

Liam Witt would have turned 9 today. In honor of his birthday, his mom Gretchen has written a special letter to all the Good Cookies who help us do what Liam would have done: fight to make things better for kids everywhere.

A few days ago I went to Memorial Sloan Kettering Cancer Center, the place where my son Liam was treated for Neuroblastoma…and the place where he took his last breath.

It’s as hard as it is easy for me to go there. I know it inside and out. I know where things are. I know the people. I know the routines.  I know the smells. I know how to read the looks on the faces I see…some have fear, some have joy, some determination and some are just lost. I know them all, because at one time or another I had one of those looks on my face, which I always tried to hide from Liam so that all he saw was love.

I was at the hospital delivering favorite snacks to a shy, 12-year old boy from Oklahoma who has been in the hospital getting ready for a bone marrow transplant, and nail polish remover and cotton swabs to his mom. Chemo makes everything taste weird, so finding foods that a child wants to eat as they try to figure out what tastes good is a never-ending process. One day one thing tastes good, the next it doesn’t. Parents frantically search for anything that tastes good…anything…just to get precious calories into their child. It was a struggle Liam’s dad and I dealt with almost every day.

The family I was visiting came to NYC for routine scans as follow up to being treated for Neuroblastoma. Their son successfully battled back from his initial diagnosis, and then subsequent relapses, which, unfortunately, is pretty common in the world of nasty Neuroblastoma. It’s one of those types of cancers that likes to come back, again and again.

Their soft-spoken son had been cancer-free for a few years when, during the scans, they found that he had developed what’s known as “secondary Leukemia,” a type of cancer caused by the toxic chemotherapy he received for his initial diagnosis. Isn’t that the ultimate irony – the drugs used to treat his cancer caused another type of cancer, which is only treatable with a bone marrow transplant. This is the type of cancer Robin Roberts from Good Morning America recently battled.

They had packed enough clothes for a 3-day trip for those scans, but discovered they’re now going to be in NYC for 5 months. He was admitted immediately to start the rigorous process of a stem cell transplant.

Hospital time drags on….it’s awful and sucks the life out of you. 5 minutes can seem like 5 hours as you wait and wait and wait. When I dropped off the supplies, the boy’s mother was so grateful. It was the first time we were meeting, and yet we instantly knew each other. She wanted to sit in the small kitchen area on the pediatric floor designated for families and talk. I sat in the very same orange chair Liam sat in so many times. She told me she has to leave to go back to Oklahoma on Saturday for two weeks to complete nursing school. If she doesn’t go back now, she’ll need to start nursing school all over again. She is switching spots with her husband, who had just arrived to relieve her. They also have a 14-year old son who is back in Oklahoma. The emotional toll cancer treatment has on a family is one that is so hard and yet very rarely told.

While I was walking up to the pediatric floor, I walked through Nuclear Medicine and had a hug fest with the head of the department, the assistant manager, and several of the technicians. Several had come to Liam’s memorial service. We all cried together and told stories of Liam playing his blue guitar in the hallway with a small, empty box of Cheerios in front of him ready to take donations.

We reminisced how he would serve water to everyone in the waiting room, anxiously awaiting their name to be called out to go to a scanning machine that would reveal the state of their cancer. No one ever said no to Liam’s hospitality. I couldn’t believe how vivid their stories were of him. We all miss him and everyone marveled at how Liam’s sister, Ella, has grown so big.

And then I stopped in to radiology. It was a radiologist who found Liam’s first relapse, which was so small it didn’t appear on the sensitive nuclear medicine scan but showed up on a CT scan. We all thought it was nothing. It turned out it was something.

I saw people from Liam’s beloved cafeteria, where he was heralded as the next great chef. They would give him a chef’s hat and apron and take him into the kitchen to see how French Fries were made. I think the reason so many people were touched by Liam is because he took a genuine interest in them, and in what they were doing. And by doing so, showed how much he cared. It was beautiful to watch.

When I was leaving, I ran into Dr. Kim Kramer, who was one of Liam’s doctors on the Neuroblastoma team, and is now focusing her efforts on brain cancers. We hugged. We remembered. She told me that the project funded by a $100,000 grant recently provided by Cookies for Kids’ Cancer is now a treatment children are receiving for a horribly aggressive type of pediatric brain cancer called DIPG. It was a project that was considered risky but when given the choice between an option and no option, any option seems like a good option. And in the world of pediatric cancer which claims the lives of more children than any other disease, so many times you just want to know there is an option.

The fourth child just received the treatment and so far, all children are doing well. Can you believe that? Seriously, think about it…the money YOU raised helped fund this treatment that kids are receiving TODAY; Kids who, without this treatment, have very few if any options.

For your past efforts and your current efforts, we thank you from the bottom of our hearts. Words alone can’t express our gratitude. We promise you, your efforts are working and they are making a difference in the lives of children battling today and will help those diagnosed tomorrow. And we can’t tell you how grateful we are that you continue to be part of this journey.

Thank you for Loving Like our Sweet Liam who would be celebrating his 9th birthday today.

To our sweet boy, we will continue to do what you would want us to do and make it better for others. As you taught us, “If not now, when?”

Happy Birthday. We love you.

Mommy, Daddy and Ella

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