Cookies for Kids’ Cancer Blog

New Clinical Trial Gives Hope to Children Battling Cancer: Carter’s Story

Filed under: childhood cancer research — The Good Cookies @ 3:09 pm August 29, 2017

Ann Dang courageously shares the story of her son Carter, a.k.a Super Carter, and his battle with neuroblastoma. 

When I hear Dr. Mossé’s name, I beam. I smile and I remember the time when we had the honor to meet such an incredible doctor.  We met Dr. Mossé through our adventure with neuroblastoma. Our sweet Carter, otherwise known as SuperCarter as he was renamed by our nurses and doctors and friends, was diagnosed with high-risk neuroblastoma, stage 4, on November 11, 2011.  We were devastated when the doctors sat us down to tell us our sweet boy had cancer. No one in our families (that we knew of) had been touched by cancer. We knew friends who had gone through cancer with their families, but no one personally. We were shocked, and it took a while for us to adjust to the cancer life… to comprehend what was happening. Before we knew it, we were thrown into the world of pediatric cancer, trying to live one day at a time, one foot in front of the other, one breath at a time.

We learned to follow the protocol. And during the initial treatment plan, Carter did great. Children like him with stage 4 neuroblastoma follow the same initial protocol: a rigorous and aggressive year and a half long treatment. He never complained and smiled through every high dose chemo, surgery, stem cell transplant, radiation, and antibody treatment. He finished his initial treatment plan with no evidence of disease (NED) and we were ecstatic. We breathed a sigh of relief, and started looking ahead and thinking about the future.

But within the month, Carter woke up with a headache and asked to watch the movie Happy Feet. It was the movie that we watched during the bad days at the hospital. Tears rolled down my face, as I put the movie on, knowing my sweet boy had relapsed. Scans the next day confirmed my tears as we learned of a whole new world of pediatric cancer: the world of relapse.

In this relapse world, we found our way to Philadelphia for a second opinion, a fresh look at Carter’s cancer, and a new perspective. We were about half-way through our journey, but just felt lost. Carter was relapsing and we knew we needed more, new, and innovative treatments. Children’s Hospital of Philadelphia (CHOP) is renowned for its state of the art advances in pediatric cancer and honestly, we were hoping for a miracle. We were desperate for any treatment, any hope. We were desperate for any shred of good news.

With fierce determination and a few connections, we made it to Philly to meet Dr. Mossé. I’m still not sure how we managed to meet her, knowing she is such a busy doctor with her regular patients and ongoing research. On top of her expertise, she is such a caring doctor, taking the time to meet with families like us, who are looking for answers and desperate to find treatments to save their child. We waited patiently for our appointment, although barely moving or even taking a breath. Our journey trained us to be able to recite Carter’s medical charts and to write down dates, procedures, and medicines that he took. We even knew how to pronounce the unpronounceable words and medicines; we knew more than we ever should. We often recited his medical history without emotion at all, because any pause could bring the tears.

Then, Dr. Mossé entered the room. She was kind, light-hearted, and made us feel so at ease. She spoke so elegantly and softly, and Carter smiled at her with his big brown eyes. She was sweet and delicate when she examined him, had already looked at his X-rays before our appointment, and knew his medical history. Her suggestions for next steps were helpful, and although there’s no cure for neuroblastoma, Dr. Mossé did not make us feel defeated. Instead, she uplifted us and encouraged us… she brought us hope. And hope is a strong word for pediatric cancer families.

Dr. Mossé decided that Carter’s body needed a little break from all the high-dose chemos and treatment that he was getting. She prescribed a daily, low dose chemo for 3 month. And for 3 months, life became a little normal. We had to learn how to be normal, having forgotten what it was like. And for 3 months, we had a routine away from the hospital and clinic. Instead of 2-3 appointments a week, we were going justonce a week. It was the break we all needed. We needed to breathe. We needed to be a normal family. We needed time. In hindsight, these 3 months were the calm before the storm.

Unfortunately, Carter’s cancer returned and our family was thrown back into the world of relapse. With multiple relapses at this point, treatment options became very limited. Because of these limitations, we quickly ran out of options. Our doctors tried hard to come up with new ideas and anything that would work for our sweet boy as his body continued to fight. Eventually, his cancer took over and we lost our Carter on February 27, 2014.

There’s never a day that goes by that I don’t think about Dr. Mossé and her impact. She showed kindness to our family and gave us hope when we thought none was possible. We knew she was one of the best doctors for children battling neuroblastoma, so we were honored that she took the time to meet with us. With the way she comforted us, we wondered how she had time for conducting. We were grateful to learn that while she took time to see patients, she also conducted research and was trying to find new medicines and less toxic therapies. That was inspiring and made us appreciate her even more.

There is special meaning behind the words “hope” and “research” to a pediatric cancer family. To learn that research is underway while you are fighting is powerful. Research is happening every day, but it is slow and very expensive. There is so much more research that is needed for childhood cancer.  There is so much more that needs to be done. Many more donations are needed to make the research possible. Imagine the possibilities that new treatments could bring. Imagine a world where children do not die from pediatric cancer.

I know this is possible through the work of Cookies for Kids’ Cancer.  CFKC is funding research to help find a cure. This funding is powerful and exciting, and for families like mine who have lost their children, this is hopeful. More funding means knowing that one day soon, families will not have to say goodbye to their children. Families will have one more hug, one more laugh, one more smile and many more days with their precious children.

To learn more about the phase 1 clinical trial, funded in part by Cookies for Kids’ Cancer, available this month for kids just like Carter, click here. To donate to Cookies for Kids’ Cancer to fund research into new, innovative treatments for the #1 disease killer of kids in the U.S., click here. To send SuperCarter Cookies in honor of Carter, click here

(photos: Tough Cookie Carter)

New Clinical Trial Gives Hope to Children Battling Cancer: Lucy’s Story

Filed under: childhood cancer research — The Good Cookies @ 12:35 am August 23, 2017

Hillary Waldeisen courageously shares the story of her daughter Lucy, and her battle with neuroblastoma.

Lucy’s third round of chemo was vicious. It left her without the energy to hold her head up for more than a few minutes at a time. And this lasted for 10 days after the round ended. 10 days that felt like a lifetime. It is hard to watch your once full of life 3 year old become a shell of her former self. Pale skin, sunken eyes, bald head, scars…… I shed a thousand tears when she wasn’t looking. I remember going to the grocery store during this time and noticing all the children who were out. They were riding their bikes, running, laughing and doing all the things that kids should be doing. All the things that Lucy and 12,000 other children should have been doing. Kids should not be sitting in hospital rooms with poison pumping through their veins. Kids should not die from a disease that could be cured if we only had the funds for more research.

After Lucy finished treatment and made it through her first year of scans without cancer being detected in her body, I decided that I needed to do something to try and make a difference. I wanted to raise awareness to the fact that pediatric cancer research receives the least amount of federal funding. I wanted people to know that 12,000 children being diagnosed annually is not a disease considered “rare.” I wanted to raise money to help fund research that would hopefully save the children that I had met and whom were still fighting this ugly disease. I wanted to make all the angels proud knowing that they had inspired me and so many others into action. I wanted a cure.

I talked to fellow cancer parents about starting an organization called Lucy’s Light to raise awareness and funds for pediatric cancer. Many of them had been involved in different organizations already and had some good information for me. I received Gretchen’s name from my friend Robin who I had met while our girls were in treatment together. She told me that Gretchen had started Cookies for Kids Cancer and would be willing to offer her guidance. I then talked with my friend Carmen, another parent I met during our kids’ treatment. She told me something that made everything kind of click in my brain. She said that Gretchen had once said to her that we need to band together. Instead of having hundreds of different pediatric cancer foundations, we need to group the energy to make the biggest impact. And this totally made sense to me. I checked out the website and loved the fact that Cookies was not about one cancer or one child. I loved hearing from Gretchen that they make every dollar count. It didn’t take long for me to decide that Lucy’s Light would team up with Cookies and donate all money raised to this amazing organization. We have been supporting CFKC for over 4 years.

To learn more about the phase 1 clinical trial, funded in part by Cookies for Kids’ Cancer, available this month for kids just like Lucy, click here. To donate to Cookies for Kids’ Cancer to fund research into new, innovative treatments for the #1 disease killer of kids in the U.S., click here. To send Lucy’s Lemon Sugar Cookies in honor of Lucy, click here.

(photo: Tough Cookie Lucy)

Behind the Science: Q+A with CHOP Technician Behind Clinical Trial

Filed under: childhood cancer research — The Good Cookies @ 6:53 pm August 15, 2017

Earlier this August, we got to share the incredible story of Children’s Hospital of Philadelphia‘s Dr. Mossé, and the newly launched phase 1 clinical trial from the research of her and her team, funded in part by Cookies for Kids’ Cancer. Today, we go behind the science with Dr. Mosse’s Research Technician for a Q+A on their journey to a potentially life changing treatment.

Guest Writer: Nicole Infarinato

Research Focus:  ALK-driven neuroblastoma

Title at Children’s Hospital of Philadeplhia (CHOP):  Research Technician

Why were you interested in this study with Dr. Mosse, and what was it like to work alongside her and her team? I was interested in Dr. Mosse’s research because I wanted to do work that would benefit human health.  In college, I planned to do this by going to medical school, but I soon realized that the best way for me to contribute to medicine was through research.  Dr. Mosse is committed to advancing novel cancer therapies for children, and it was amazing to me how she bridged the space between the bench and the bedside.  When she hired me and asked me to lead this study, I felt so privileged to be part of the process.  I was just as fortunate to work with Dr. Mosse; I can only describe her as an incredible human.  She is a strong, successful, and kind female mentor – a woman in science who truly promotes other women in science.  And my lab mates became some of my closest friends and were critical to this study.  It was a definitely a team effort, and I learned so much from working with them.

How important is pre-clinical work to the overall research? Both basic and pre-clinical research are essential for making progress in understanding and treating cancer.  Pre-clinical research is exciting because it is the final stage of drug discovery that takes place in the laboratory.  We use state-of-the-art cell-based assays and animal models to recapitulate human cancer and evaluate whether a treatment is likely to work for people.  Compelling evidence must be provided in order to move forward and design a clinical trial.

Why is pediatric cancer close to your heart/What was your motivation behind this research? Although we were in a research environment, the lab was intimately linked to the Children’s Hospital of Philadelphia, and working in that setting was a constant source of motivation.  I really felt up close to the disease.  On my way to work, I walked past sick children and their families.  In the lab, we received and processed patient tissue samples.  We had an exceptional young student on our team who was a neuroblastoma survivor himself.  I even shadowed Dr. Mosse in the clinic one day, which was a deeply moving experience that I’ll never forget.  I was extremely lucky to grow up with three healthy younger siblings, and they mean everything to me – they are my best friends.  It’s heartbreaking and unfair that families are torn apart by pediatric cancer.  It’s hard to lose motivation when you know your work could potentially change that.

How did you get past potential roadblocks on the journey to this clinical trial? Research can be really frustrating at times.  The learning curve can be steep, there’s a lot of failure, and nature is usually much more complex than you anticipate.  We certainly faced times like this during the project, and it forced me to become more resilient and confident in myself.  We were ultimately successful because we worked as a team to troubleshoot and persevere.  And Dr. Mosse empowers everyone she works with, and her faith in me was deeply encouraging in the face of roadblocks.

What are your hopes for this phase I clinical trial? Dr. Mosse said something in an interview I watched before joining her lab that always stuck with me.  She talked about how conventional cancer drugs are designed for a large group of patients, but they oftentimes make a relatively small difference for them.  She wants to design targeted therapies that will make a big difference, even if for a smaller group of patients.  I hope that this clinical trial will do that for children with neuroblastoma.  Our preclinical work demonstrated that this compound has unprecedented anti-tumor activity, so we are really hoping that children will have significantly improved treatment outcomes.

What would you say to anyone who is thinking about getting involved with Cookies for Kids’ Cancer? Research like ours would not be possible without funding from organizations like Cookies for Kids’ Cancer.  I would encourage everyone to get involved in any way they can and be part of the effort to solve the enormous problem of childhood cancer.  This is a remarkable era for cancer research, and so much progress has already been made to improve therapies and outcomes.  If you contribute to Cookies for Kids’ Cancer, you are helping to expedite the process of moving new drugs from the laboratory to children in the clinic.

To read more about the phase 1 clinical trial available to children this month, click here. To donate to Cookies for Kids’ Cancer to fund more critically needed research into treatments for childhood cancer, click here.

photo: Nicole Infarinato

 

 

 

 

 

 

New Clinical Trial Gives Hope to Children Battling Cancer: Ber’s Story

Filed under: childhood cancer research,kids fighting cancer — The Good Cookies @ 1:56 pm August 8, 2017

 

Amber VanderMeer courageously shares the story of her son Ber and his fight with neuroblastoma. 

Our introduction to the world of pediatric cancer came in 2007, when our sweet and innocent son, Ber (“Bear”), was diagnosed with stage IV neuroblastoma the week of his fourth birthday.

2007 was a very memorable year for our family.  We moved into our new house in January and in June we welcomed our precious daughter Elizabeth.  In October, Ber began to sporadically complain about some aches and pains. We took him to the doctor and it was suggested that he was simply having growing pains. Toward the end of November, Ber’s energy declined. He started running a low fever and he just wasn’t himself.  Ber turned four on Monday, November 26 and on Friday, November 30 we learned that Ber had cancer.

How did this happen?  How did we go from worrying about having enough goodie bags to trying to figure out how to fight pediatric cancer and save our son’s life?  We quickly developed a treatment plan and began the process of trying to get the upper hand on the cancer cells that were attempting to take over Ber’s small body.

With Ber, we talked about “strong medicine” that would make him feel bad, but was needed to kill the “bad cells”.  We gained a new vocabulary full of words like hickman lines and neutropenia.  We became members of a new community full of parents trying to save their children too.  We learned that most of the treatment options were toxic and would likely cause other complications such as hearing loss, heart damage, and even other forms of cancer.  When they hang a bag of IV chemotherapy that is labeled “caution – carcinogen” it sends up all kinds of red flags in your head. But what else can you do when this is the standard procedure?

Over the next seven and a half years we were incredibly fortunate to put together the right combination of treatments to rid Ber’s body of cancer.  This included chemotherapy, surgery, radiation, immunotherapy, and a neuroblastoma vaccine.  Not all of the treatments would work the way we had hoped they would.  Clinical trials gave us additional treatment options and provided hope when we needed it most.

Cookies for Kids’ Cancer funded the neuroblastoma vaccine that Ber received and is dedicated to raising money to fund less toxic treatment options for pediatric cancer patients.  We are eternally grateful and want to encourage others to support this cause.

It’s so easy to send cookies to someone, host a bake sale, organize a hat day, and make others aware of the fact that sadly only 4% of the National Cancer Institute’s budget is dedicated to all types of pediatric cancer combined.  Everyone has the ability to make a difference in the lives of children fighting cancer.

“Alone we can do so little; together we can do so much.” Helen Keller

To learn more about the phase 1 clinical trial, funded in part by Cookies for Kids’ Cancer, available this month for kids just like Ber, click here. To donate to Cookies for Kids’ Cancer to fund research into new, innovative treatments for the #1 disease killer of kids in the U.S., click here.

 

Photos: Ber & his family.

From Good Cookie to Clinical Trial

How Your Support Has Helped Develop A New Treatment For Pediatric Cancer

Today is a good day. Today we are filled with hope. Because today marks the launch of a clinical trial for a new, less toxic treatment for children battling cancer. Days like these are so meaningful because it means that we are doing what we have set out to do, which is to empower and inspire Good Cookies all across the world to join us in raising funds and awareness for pediatric cancer research! We are very excited to announce the news of this phase 1 clinical trial with you today and to share more details of this important story over the next few months.

We sharing lots of information on our social media, through our email newsletter, and we will be posting a series of blog posts written by families with children who have battled or are still battling neuroblastoma, the deadly form of cancer that this new drug is designed to treat. We hope you stay tuned for these personal stories and are inspired to be the best Good Cookie you can be!

One Doctor, Years of Work, and HOPE at the Launch of a Clinical Trial.

It all starts with Yael P. Mossé, MD and her brilliant work at Children’s Hospital of Philadelphia (CHOP). Dr. Mossé is an attending physician at CHOP’s Cancer Center with a special interest in neuroblastoma. Her work led to a grant submission to Cookies for Kids’ Cancer in 2015, and approval by our Medical Advisory Board. It was the first grant Mossé received for this stage of pre-clinical work on the promising new drug, called Lorlatinib.

Six months after receiving the first grant from Cookies for Kids’ Cancer, Dr. Mossé’s results were moving ahead so rapidly that the NANT Consortium [New Approaches to Neuroblastoma Therapy] and the drug’s manufacturer, Pfizer, all began to merge interests to move toward the clinical trial phase. Alongside these developments came another $200,000 grant from Cookies for Kids’ Cancer to insure the testing and data were of the highest quality in hopes of benefitting children with neuroblastoma.The work has led to the launch of the trial’s enrollment process at several sites including Children’s Hospital of Philadelphia, and will become available at all 16 centers over the next several weeks.

The phase 1 study is enrolling patients at the following 16 centers:

UCSF School of Medicine    

Children’s Hospital Los Angeles

Cincinnati Children’s Hospital

Lucile Packard Children’s Hospital

Children’s Hospital Colorado

Children’s Hospital of Philadelphia

C. S. Mott Children’s Hospital

Cook Children’s Healthcare System

Hospital for Sick Children, Toronto, Canada  

Seattle Children’s Hospital      

Memorial Sloan-Kettering Cancer Center

Children’s Healthcare of Atlanta   

University of Chicago, Comer Children’s Hospital

Royal Marsden Hospital, London, England

Institut Curie, Paris, France

Children’s Hospital Boston, Dana-Farber Cancer Institute

There are so many Tough Cookies out there who could benefit from a new treatment such as this one. And although we cannot know if this first trial will lead to a second, or to a cure, we believe that this trial will serve as a source of hope for the children and families out there who are in the fight of their lives.

With your help, Cookies for Kid’s Cancer will continue funding this type of research and working alongside brilliant doctors like Dr. Mossé and respected research institutes like Children’s Hospital of Philadelphia, to develop new treatments for precious children who are battling this disease.

We will be sharing more details about this clinical trial, the story behind of how it all came together, and ways that you can help continue to fund these developments in pediatric cancer research across our social media channels so be sure to stay tuned! Facebook, Twitter, Instagram

#DoriesCookies

Filed under: childhood cancer research — Tags: , — The Good Cookies @ 8:43 pm October 19, 2016

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Calling all Good Cookie Bakers! 

Beloved baker and longtime Good Cookie friend Dorie Greenspan is encouraging fans to get their bake on this holiday season to support Cookies for Kids’ Cancer.

Want to help? Here’s how:

1. REGISTER your event. 

2. In the dropdown menu under “How did you hear about Cookies for Kids’ Cancer,” choose “Dorie Greenspan” to receive a FREE Bake Sale Starter Kit with everything you need to brand your event from stickers, to treat bags, to donation jars and more!

3. Host a bake sale, cookie swap or other event in your community.  When you raise $1,000, you’ll receive a FREE signed copy of Dorie’s new book, Dorie’s Cookies and when you raise $2,500, you will receive a signed copy of Dorie’s new book AND be entered for a chance to win a day of baking with Dorie!

4. Make a recipe from Dorie’s Cookies (her new cookbook!) and post a picture to your Instagram page tagging @Cookies4Kids and using the hashtag #DoriesCookies to trigger a $5 donation to Cookies for Kids’ Cancer. 

Added bonus: every dollar raised, up to $250,000, will be matched from now through December 31st!  

Cookies for Kid’s Cancer is a national 501(c)3 non-profit committed to raising funds for research to develop new, less toxic treatments for pediatric cancer, the #1 disease killer of children in the U.S. 

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Facts of Childhood Cancer

Filed under: childhood cancer research — The Good Cookies @ 8:00 am July 15, 2016

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IN THE NEWS

Study Findings Reinforce Cookies’ Pursuit for Safer Childhood Cancer Treatments

A study released in the July issue of the Journal of Clinical Oncology found that survivors of childhood cancer are at an increased risk for developing diabetes, thyroid problems, obesity and other endocrine abnormalities later in life. The study’s findings underscore the sole purpose behind Cookies for Kids’ Cancer— funding medical research to find new, improved childhood cancer treatments that are safer and less toxic.

Here are some of the stark facts of childhood cancer:

  • It is the #1 disease killer of children in the U.S.
  • Less than 4% of the National Cancer Institute’s budget goes to all childhood cancers combined.
  • Two-thirds of childhood cancer patients will develop long-term side effects, many life threatening — a result of the treatments that “cured” them.
  • Only four of the 12 most common types of childhood cancers have average survival rates over 80%.
  • 13,500 children in the U.S. are diagnosed with cancer each year.

Together, with the help of thousands of Good Cookies, we are changing these facts and giving children facing cancer treatment the hope they deserve.

Help us to make a difference. Be a part of our #50states campaign this September—Childhood Cancer Awareness Month—and raise awareness and funds for childhood cancer research. Be a Good Cookie.

Cookies for Kids’ Cancer 7th Anniversary: Letter from Gretchen Witt

Filed under: childhood cancer research,community fundraising ideas,Good Cookies — The Good Cookies @ 8:21 pm September 13, 2015

Gretchen and Fireman

Sunday, September 13th is National Childhood Cancer Awareness Day. Seven years ago this weekend, on 2008’s National Childhood Cancer Awareness Day, Cookies for Kids’ Cancer launched as a national non-profit.  Since that day, nearly 7,000 fundraisers have been held in all 50 states and 18 Countries. And as the support has increased from Good Cookies like you, so have the funds going directly to researchers – from a few hundred thousand dollars given in the first two years, to two million dollars last year alone. How much money has been granted so far? Over $7 million dollars has funded 6 dozen critically needed childhood cancer research projects. From those projects, more than two dozen new therapies have moved from the lab to the bedside. By the end of the year, that number will be cresting a total of $10 million granted. Thanks to you.  
 
We look back now and time looks so different. For those of us here today, we count the years with memories and milestones. At the exact moment our 2 ½ year old son Liam was diagnosed with childhood cancer in 2007, my husband Larry and I were shocked to learn of the paucity of treatments available to children. When we asked why there weren’t many treatment options, the answer was so simple it was stunning: children’s cancers get the short end of the funding stick for research. So, not enough money equals not enough research which equals not enough treatments. Not enough for our children. Not enough for our future. Not enough for the generation with the most promise in front of them, the most life left to live. As incredulous as we were, we had one job to do: to help Liam fight back this insidious, cowardly disease.
 
We had no idea that 7 short months after Liam’s diagnosis, we would rally 250 volunteers to bake and sell 96,000 cookies for the first-ever Cookies for Kids’ Cancer cookie sale that would raise over $420,000 for one promising treatment. We also had no idea that less than a year after the ovens cooled from that first massive baking effort we would launch a national non-profit that would inspire so many individuals to Be a Good Cookie. And we certainly had no idea that despite our best efforts, that the life of our wonderful, amazing son would be cut short – a few months shy of his own 7th birthday – due to lack of effective treatments.
 
At times it has seemed unimaginable to march on, but we have and we must. Not only in honor of Liam and his life, but also in honor of all children and the lives they deserve to live – fully and free from fear of this terrible disease.
 
As we begin our 8th year, a year Liam never saw, we are more determined than ever to do everything we can to help the 40,000 children who are battling cancer today. We hope you will continue to join us on this journey. Host an eventsend cookies or simply make a donation. Every dollar counts and together, we are making the world better for generations to come.

 

Love Like Liam. 
Gretchen Witt
Founder, Cookies for Kids’ Cancer

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Anguilla Good Cookies

Filed under: childhood cancer research — Tags: — The Good Cookies @ 5:00 am August 17, 2015

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At the Chefs for Kids’ Cancer event in NYC in February, two dedicated Cookies for Kids’ Cancer supporters – Joel and Robin Globus – generously donated a week-long Carribbean getaway to their vacation home in Anguilla. The home, Tequila Sunrise Villa, is a little slice of paradise that comes complete with sweeping views of the bay, an infinity pool, and the cutest STUFFED billy goat mascot you’ve ever seen.

The winners of the week bought it in support of childhood cancer research and then booked their week in honor of their 25th wedding anniversary. The highlight of their trip was having meals specifically prepared each night in the kitchen at Tequila Sunrise Villa by notable chefs.  NYC Chefs Marc Forgione, owner and executive chef of Restaurant Marc Forgione, American Cut, and Keh-Yo, and Alfred Portale, owner and executive chef of Gotham Bar & Grill, both flew to Anguilla to prepare dinners for the Simpsons. Three of the top restaurants in Anguilla generously volunteered their chefs for the remaining nights – Marc Alvarez of Straw Hat Restaurant, Carrie Bogar of Veya Restaurant, and Dale Carty of Tasty’s Restaurant jumped at the chance to support this worthy cause. The Good Cookies at CuisinArt Golf Resort & Spa generously donated rooms and services for the visiting chefs.

Nori Evoy and her staff at Anguilla-Beaches.com were on hand taking photos each night and capturing the once-in-a-lifetime moments for the Simpson family. She has written a blog about the experiences each night. Click here to read more about these amazing Good Cookies!

 

 

For Your Fact Friday: Meet Momcology

Filed under: childhood cancer research — Tags: — The Good Cookies @ 5:29 pm July 24, 2015

Momcology pictureThis week, Fact Friday is brought to you by our friends at Momcology, a group of women bound by one thing – being the mom of a child diagnosed with cancer. These women are caretakers, nurses, nutritionists, physical therapists, inventors, world-class entertainers, teachers, philanthropists, psychologists and advocates every single second of their lives after the moment they hear the words, “your child has cancer. 

We are beyond excited to announce we are teaming up with Momcology, starting this September during Childhood Cancer Awareness Month. Hear directly from their Founder, Kim Buff.  

 

“Your child has cancer.”

These four words devastate the path of a family’s future.

Momcology’s mission is to facilitate critical information sharing and peer support for pediatric cancer families as they begin to navigate life after diagnosis while caring for a very ill child.

Today 1 in 5 children will not survive childhood cancer. Momcology has partnered with Cookies for Kids’ Cancer to change these statistics by focusing on the most promising collaborative research in the world through directly funding the Children’s Oncology Group Phase I & Pilot Consortium at the top 21 peer reviewed research hospitals across the country.

Children are diagnosed and treated with cancer in every community. Momcology believes in collaboration, transparency and aggressively working with others toward our ultimate goal to eradicate childhood cancer so that every child has the chance to simply grow up and experience a healthy life.

Thank you for being a Good Cookie and supporting our Tough Cookies.

Love,

Kim Buff and all the Moms of Momcology

unnamed                             CFKC 2014

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